Eddie released a couple of new singles and shared an animated video for the powerful, passionate, and poetic song “Matter of Time”, and a video of his live performance for “Say Hi.”
Eddie personally premiered both songs as part of Venture Into Cures. As co-founders of EB Research Partnership (EBRP), the association for raising awareness of Epidermolysis bullosa, Jill and Eddie Vedder proudly presented the digital event streamed free to viewers around the world on official YouTube channels. and the Eddie Vedder and Pearl Jam Facebook pages, as well as the EBRP site and social media platforms and NUGS.net…. Fans from all over the world tuned in to support.
The event showcased encouraging stories about individuals and families living with Epidermolysis Bullosa (EB) along with appearances and performances by famous friends to educate viewers about EB and raise funds for research on a cure for EB and other rare diseases.
Produced by Door Knocker Media and Seed Entertainment, a cast of guest stars performed during the broadcast: Judd Apatow, Bradley Cooper, Laura Dern, Billie Eilish, Chris Hemsworth, Jimmy Kimmel, David Letterman, Gaten Matarazzo, Luis “King Kong” Ortiz , Adam Sandler and Renée Zellweger. While voices like Jon Batiste, Alessia Cara, Andra Day, Glen Hansard, Adam Levine, Keb ’Mo’ and Lukas, Micah and Willie Nelson gave incredible and heartwarming shows.
EB is a life-threatening genetic disorder that affects approximately 500,000 people worldwide. Called “Butterfly Children” because their skin is as fragile as the wings of a butterfly, children with EB face severe pain, open external and internal wounds, and a grueling daily dressing process. There is currently no treatment or cure for EB, yet EBRP’s innovative Venture Philanthropy model is helping accelerate not only a cure for EB, but also therapies that could affect thousands of other rare diseases.
Keep going for the videos below: